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News

Live Researcher Chat
Dying and End-of-Life Care Planning

We are delighted to announce that we will very soon have the opportunity to speak with guest researcher Professor Irene…

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“It is difficult to have our voices heard”

International Case Studies on Legalised Assisted Dying, with relevance for Down syndrome community   “People with Down syndrome and other…

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Two Stories of Legacy Giving

“The true meaning of life is to plant trees, under whose shade you do not expect to sit.” — Nelson…

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Only 2 weeks to respond!
Call for Evidence Assisted Dying

Dear Community, We are writing to let you know that the Terminally Ill Adults (End of Life) Bill on Assisted…

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Get involved to express your concerns about the Assisted Dying Bill before it becomes law

What happened with the recent debate and vote on the Assisted Dying Bill?   Kim Leadbeater’s Terminally Ill Adults (End…

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Rushed-through Assisted Dying Bill posits a serious threat to future care of people with Down syndrome

Kim Leadbeater MP has proposed a Terminally Ill Adults (End of Life) Bill, details of which have only just been…

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We’re establishing a Down Syndrome Sleep Research Network!

We are delighted to announce that funding has been secured for the creation of a Down Syndrome Sleep Research Network.…

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Recruiting Now- the Rest-Ed Study on sleep in children with DS

WATCH THE FACEBOOK LIVE HERE!   Many children with Down syndrome (DS) experience sleep problems that can affect both their…

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Key Findings from the NCMD Report on Child Deaths in Children with Learning Disabilities and Autism

<Warning contains upsetting themes to some readers> The National Child Mortality Database (NCMD) recently published a report that sheds light…

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