We are reaching out to researchers, healthcare professionals, sleep charities and DS-focused charities to invite you to the launch of our new research network. The full-day event will be held in London on Monday 9th June 2025.

This launch event has now opened for sign-ups from professionals and charity representatives. 

We are proud to announce that this research network will be the first of its kind globally, concentrating on the specific connections and challenges linking Trisomy 21 and sleep disorders, and we hope it will be at the forefront of breakthroughs in this field. If your work brings you in contact with sleep disturbances and their impact on the Down syndrome community, we would love to get connected to you through this event, and give you access to more information on what the Research Network will offer. The launch day will involve learning, networking, and focus on research and advancements in the area of Sleep Disorders and Down syndrome.

Sleep problems among people with Down syndrome are very common, and deficits in sleep create profound repercussions for health and longevity. This research area has long been identified as crucial to focus on: but until now, it has not been given the attention needed. We invite you to come and see how your expertise and skills may help contribute to new advances in sleep science specific to the DS community. We encourage you to spread the word about the launch to colleagues and friends in related disciplines, if you can. The event is free, thanks to generous sponsors.

The day begins with an introduction to DSSRN’s mission and goals, followed by expert-led presentations covering the latest research and clinical insights. Professor Catherine Hill and Dr Lizzie Hill will provide a comprehensive overview of sleep issues across paediatric and adult populations. Dr Stephanie Brown from the University of Cambridge will explore cutting-edge imaging research that examines the role of sleep dysfunction in Alzheimer’s disease among individuals with Down syndrome, alongside insights into behavioural complexity in related conditions like Prader-Willi syndrome.

Sessions will also include an early case report on Inspire device upper airway stimulation from the team at Great Ormond Street Hospital, presented by Mr Liam Sutton. Prof Alice Gregory will be discussing sleep disturbances in type 1 diabetes as a model for broader understanding.

Thanks for your support in making this launch a success and helping it reach as many interested professionals as possible. It’s time to cooperate to bring about change through sleep research for the worldwide Down syndrome community.

How to register to attend the launch: Please get in touch with organisers at info@dssrn.org.uk to claim tickets and for more details on the event.

David Elliott and Dr Liz Corcoran, chair of the DSRF UK and sister.