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News

NDSPG Advisory Group
1st Summit was an inspiring success

The Foundation Chair, Dr Liz Corcoran was proud to support the first ever Advisory Group Summit recently on Thursday 27th…

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Update: Results of Parliamentary Debate on the Down Syndrome Act

Three years after the Down Syndrome Act 2022 received Royal Assent, the DS community are still waiting on guidance to…

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Live Researcher Chat
Dying and End-of-Life Care Planning

We are delighted to announce that we will very soon have the opportunity to speak with guest researcher Professor Irene…

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“It is difficult to have our voices heard”

International Case Studies on Legalised Assisted Dying, with relevance for Down syndrome community   “People with Down syndrome and other…

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Two Stories of Legacy Giving

“The true meaning of life is to plant trees, under whose shade you do not expect to sit.” — Nelson…

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Only 2 weeks to respond!
Call for Evidence Assisted Dying

Dear Community, We are writing to let you know that the Terminally Ill Adults (End of Life) Bill on Assisted…

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Get involved to express your concerns about the Assisted Dying Bill before it becomes law

What happened with the recent debate and vote on the Assisted Dying Bill?   Kim Leadbeater’s Terminally Ill Adults (End…

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Rushed-through Assisted Dying Bill posits a serious threat to future care of people with Down syndrome

Kim Leadbeater MP has proposed a Terminally Ill Adults (End of Life) Bill, details of which have only just been…

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We’re establishing a Down Syndrome Sleep Research Network!

We are delighted to announce that funding has been secured for the creation of a Down Syndrome Sleep Research Network.…

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