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News

2026 marks the 30th Anniversary Year of the Down Syndrome Research Foundation UK

We wish you a very happy New Year! We begin 2026 with hope, especially as it’s a milestone year for…

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Update on the Assisted Dying Bill in the House of Lords – 7th November 2025

A Select Committee of the Lords was set up to take evidence on the Assisted Dying Bill, and over the…

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Draft Statutory Guidance for the Down Syndrome Act has just been issued: what are the next steps?

Today on Wednesday 5th November 2025, the Draft Statutory Guidance for the Down Syndrome Act was released. Now it needs…

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Downs Syndrome Awareness Month 2025

This Downs Syndrome Awareness Month, we’ve spoken with some of our collaborators and patrons, and would like to shine the…

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Legacy Giving: ‘Remember a Charity’ Week is 8th to 14th September 2025

This week, we’ll be putting legacy giving in the spotlight. ‘Remember A Charity’ Week is a great opportunity to think…

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Down Syndrome and World Alzheimer’s Awareness Month

September is World Alzheimer’s Month – dedicated to raising awareness of a condition which is increasingly affecting the general population.…

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Adaptability of sleep and the ‘sleep privilege’: the need for new research

How much should parents and caregivers worry about sub-optimal sleep? This issue was recently brought to our attention by Professor…

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Assisted Dying Bill Updates
Last Stages involving MPs

Write to your MP- Simple Tool Here- Before Friday! We now have a quick email tool available to use to…

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“You shouldn’t be dying just because someone else has deemed you unworthy.”

Write to your MP- Simple Tool Here- Before Friday!   DSRF was privileged to speak recently with Jen, who has…

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