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News

The BEOND study is now open to families with Down’s syndrome!

What is the BEOND study? “BEOND” is a survey study run by the Cerebra Network (www.cerebranetwork.com). The survey will be…

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Pilot Project: gathering the views of people with intellectual disabilities on Assisted Dying

DSRF UK continues to be concerned about the topic of Assisted Dying and the Down syndrome community, and we’d like…

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Request to Families in the Down Syndrome Community – get involved to help us improve sleep research resources

The DSSRN (Down Syndrome and Sleep Research Network) held its first ever online meeting on Monday 23rd March 2026, bringing…

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Down’s Syndrome Research Foundation UK Response to the UK Government’s Draft Statutory Guidance for the Down Syndrome Act 2022

    Registered Charity in England & Wales 1058548 Company Limited by Guarantee 3228419   Down’s Syndrome Research Foundation UK…

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Part Three: “An emotional load was lifted” – hope for the future of children with Down syndrome

Following World Down Syndrome Day, we conclude our 3-part blog series about the lived experience of a parent in the…

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Part Two: “It could have been different”: advocating for more access to research

Following World Down Syndrome Day, we continue our 3-part blog series about the lived experience of a parent in the…

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Part One: An ‘incredible difference’: how research can improve lives

For World Down Syndrome Day, we are introducing a 3-part blog series about the lived experience of a parent in…

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Concerns about the McArthur Assisted Dying Bill in Scotland in relation to Down’s Syndrome

The Down’s Syndrome Research Foundation UK recently sought the opinion of people in Scotland about the currently debated McArthur Bill…

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The Ongoing Impact of Covid Lockdowns on Children with Down Syndrome: new report

A new report from University College London has just been published, examining the effects of Covid lockdowns on young children…

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