Many children with Down syndrome (DS) experience sleep problems that can affect both their health and the wellbeing of their families. These issues may be due to breathing difficulties during sleep (like sleep apnoea) or challenges with settling down and staying asleep.
The Rest-Ed Team are inviting families to participate in a new study aimed at improving sleep for children with DS, aged 6 months to 5 years. This research will help us find out if a simple parent education package—including an MP4 film, booklet, and brief talk – delivered online in a small group setting to parents/carers can improve sleep and quality of life for both children and their carers.
How the Study Works:
- Families will have a sleep study done at home.
- Children will be assigned to one of two groups to receive the parent education package.
- Parents will complete short questionnaires about sleep and quality of life throughout the study.
- All aspects of the study are performed online/remotely.
This research is being conducted by NHS Lothian and the University of Edinburgh, with support from Down’s Syndrome Scotland BUT they are now pleased to announce they are recruiting across the UK!
Want to Take Part? If your child is aged between 6 months and 5 years and has DS, you may be eligible to join.
To learn more, please contact the REST-Ed team at loth.rested@nhslothian.scot.nhs.uk
Speak to the lead investigator, Dr Florian Gahleitner on 0131 312 0453
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