The window of opportunity to input to the Government’s Call for Evidence (CfE) on the Down Syndrome Act is almost closed.  The Department of Health and Social Care will close their CfE on 8th November.  We strongly urge you to add your thoughts to their process.  The CfE is online and can be accessed here . Easy Read versions here.

Alongside the Government’s evidence gathering, the National Down Syndrome Policy Group (NDSPG) is running its own consultation, looking in more depth across the areas of health, education, social care, employment and housing.  The NDSPG’s consultation will also close on 8th November.


The NDSPG’s consultation follows two phases.  Phase 1 is open ended and welcomes all points of view across the areas of health, education, social care, housing and employment and can be accessed here.


Phase 2 seeks to get more detailed information and focuses on three groups – parent/carers, adults with Down syndrome and professionals supporting people with Down syndrome.  All of the surveys (together with PDFs copies to look at ahead of completing) can be accessed at


The links for the questionnaires specifically for parents/carers can be found below:


Transitioning to adult social care

Social care for children / young people under 18


The links for questionnaires specifically for adults with Down syndrome can be found below:



Adult social care


The following link is specifically for professionals supporting people with Down syndrome:



Again, we encourage you to take a look at the surveys and complete whatever you’re happy to.  All views will be fed into the DHSC’s process with the aim of ensuring the guidance the Government publishes is effective, clear and provides a strong foundation for services provided to support people with Down syndrome.


Please let us know if you have any questions.