Welcome to our community. The DSRF UK knows these can be bewildering times, but you are not alone.
Receiving the news your baby has Down’s syndrome can be a difficult time for a family. Thankfully resources are available to guide and support you on your journey. Offering that important component – hope.
The community you have joined is an exceptional one, call on them for support.
There have been great advancements in education and therapy interventions, but the promise of medical research means the future is brighter than ever for your baby.
“This booklet was hands down the best information source I received in the early days when my daughter was born almost 13 years ago.”
Down syndrome Pregnancy has created books (e.g. Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome) to offer support to expectant parents who are preparing for the birth of a baby with Down’s syndrome/Trisomy 21. All of their materials offer compassionate, practical, and up-to-date information and have been reviewed by leading medical and Down syndrome experts.
Positive About Down’s Syndrome is a website by parents for parents and aims to show the reality of life with DS and offer support through answering your questions and providing up to date information.
The Down’s Syndrome Association produce a lovely booklet “Looking Forward to Your Baby” free to download. They offer support to new parents via their helpline on 0333 1212 300 (Monday to Friday 10:00 am – 4:00 pm or by email firstname.lastname@example.org
There is a secret group on Facebook you may wish to join, exclusively for parents who have received a positive diagnosis and are continuing with their pregnancy.
https://www.facebook.com/groups/FoDPregnancySupport/ and on BabyCenter